Tag: musings

Buying time to recover

Every morning I wake up in the middle of a dream about work. The dreams are surreal and disturbing.

I was at the height of a full manic psychosis at the point of last contact about two months ago. That is not an impression one wants to leave. It has taken a long time to slow down enough to appreciate just how agitated I have been. One can no more pull oneself out of depression than one can throw the breaks on a train running at full manic speed. And my memories of those last few weeks are hazy at best.

Technically I still have the potential of returning to work. I was a senior manager and I worked at this small not for profit agency for nine years without incident until a series of circumstances contrived to create an increasingly dysfunctional, toxic environment. And, well, long story short, the pressures took a devastating toll on my mental health. After a decade and a half of relative stability, I became ill. And as a bipolar person with a strong swing to the manic, I left in a spectacular flourish. So I have no real idea what remains for me there.

In all fairness I was paid out generous sick time and vacation pay and I do have access to a short term disability benefit that should see me through the next few months. The approval process has proceeded with typical government efficiency. But today I finally received confirmation of my application and that is a tremendous relief.

Copyright JM Schreiber 2014
Copyright JM Schreiber 2014

I just hope the dreams about work fade for while.

And I can spend some time reading and reflecting about where I go from here.

Making peace with our ghosts

There is a question tends to haunt those of us who live with mood disorders, especially in the early months of adjusting to a diagnosis or in the aftermath of breakdown:

Who Am I?

There is this persistent fear that, if the highs and lows of this “disorder” should ever hit equilibrium, what will be left?

And will that stable “me” be the real me or a medicated artifact?

Copyright JM Schreiber 2013
Copyright JM Schreiber 2013

The theory is that mood disorders are typically associated with “normal” periods but as most of us know, mania and depression can simmer under the surface, felt rather than observed for a long time. When symptoms burst through resulting in “abnormal” thoughts, actions and behaviours, those around us rarely understand that these are beyond our control. And because insight is impaired, when we are at our most unstable we are often the last to know just how far off the rails we have run. All this is further complicated when a mood disorder exists in conjunction with addictions or trauma or other chronic conditions.

Having a mood disorder is like living with ghosts.

But we own those ghosts. They are us. Everyone has them.

Ours just like to try to steal the stage, set the agenda, write the script and direct the show.

Maybe that is why I am drawn to so much fantastic literature lately… allowing the ghosts of others to distract me from my own.

The detective and the end of the world: The Coming by Andrej Nikolaidis

If you are a bit of a news junkie like I am, there is a lot of bad news on our TV screens and computers each day. Violent political upheaval, deadly viruses, floods and fires. But it is scattered and for so many of us our complaints are relatively minor, isolated. What if the signs suddenly started to rapidly multiply and spread across continents and communities. Would it herald the end of the world? Would we know or even agree on the meaning of the signs? Assign them to God, reduce them to science?

Translated by Will Firth Istros Books, available through Dzanc Books in North America
Translated by Will Firth
Istros Books, available through Dzanc Books in North America

The Coming, a wonderful novella by Montenegrin novelist Andrej Nikolaidis explores such questions from a rather unconventional perspective. Our hero is a private detective, a small town Philip Marlowe based in the ancient city of Ulcinj. He finds himself most comfortable providing his clients with the answers they want, regardless of whether or not he even manages to find the truth behind a crime or infidelity. This approach makes him popular with the locals who prefer to approach him  rather than the authorities. Consequently the quiet life he seems to desire tends to allude him. As the book opens he has become obsessed with the particularly brutal murder of an entire family which appears to have coincided with the burning of the local library.

Yet even stranger phenomena begin to threaten his routine. Snow starts to fall in June and does not let up. Around the world catastrophes – earthquakes, floods, raining amphibians – are reported with alarming intensity. Is this the Apocalypse, is the Second Coming finally at hand?

For our poor detective who faces this most peculiar string of circumstances with cynical humour and frustration, there is an added factor. Emmanuel, a child he fathered during a brief affair with an irresistible client, is now grown and has tracked him down from an asylum in the Alps where he has been confined after some serious mental breakdown. Through a series of emails Emmanuel shares details of his childhood with the father he has never met and offers his curious knowledge of messianic mystics, millennial cults and numerous attempts to calculate the date of the end of the world throughout western history. Perhaps because he himself has a mental illness, Emmanuel interprets the reported behaviours of many cult members or their charismatic, wildly erratic leaders in reference to what would be probable modern psychiatric diagnoses.

For myself, personally, in the months that followed my diagnosis with bipolar, I struggled to make sense of the role of my illness in the intensely spiritual experiences that I had periodically encountered growing up. During full blown psychosis, I could imagine that the frantic notions that I had the answer to the meaning of life were indeed in keeping with mania. I had the cramped and panicked nonsensical documents to prove it. But what about the earlier visions and spiritual experiences? Far less dramatic, frequently beautiful, these moments had filled me with such an assurance of the existence of God that I completed an honours degree in philosophy without once being troubled by any ontological questions. I could argue for or against the existence or nature of God while my own personal spirituality remained intact.

However, as I started to read about psychotic symptoms, I began to recognize similar features in the visions of Biblical prophets, the martyrdom of saints, the trance states of mystics and other ostensibly spiritual experiences. I could not divorce my own experiences from an underlying framework of biochemistry. My sense of personal faith crumbled.

Over the years as I have watched good people of faith rejected by their churches following mental breakdowns, I have been increasingly concerned by the double standard. After all who draws the line between mystical vision and clinical madness?

The Coming sees no need to draw those distinctions. I loved the way the pragmatic emails from the detective’s estranged son reach out to a world that may well be facing its final hours with the observation that the human desire for an Apocalypse can be compared to our urge to fast forward through a detective movie because we can’t wait to see how it ends.

We want answers – but we those answers to come from God or from science, not from the visions of those who are determined to be not in their right minds.

The courage to write

For some 30 years I have packed and unpacked, shelved and reshelved a library full of books that I have not yet read but would not dream of carting off to a charity sale. Naturally I assume that the day will come when that book will come to my attention and, conveniently I will have it at hand. Of course, in the meantime a wealth of new books have joined my libraries, actual and electronic, so that all those long held treasures run the risk of absolute obscurity. I suspect more than a few book addicts can relate.

And sometimes the tendency to hoard a book pays off, though sadly that time is too often heralded by the death of the author.

20140809_222130I must have purchased Nadine Gordimer’s Burger’s Daughter, in the very early 1980s. I was studying anthropology and working part-time in a bookstore. South Africa and the struggles against Apartheid would have held a particular resonance for me through the presence of a number white South African ex-patriots who had found their way to the Anthropology department of a Canadian university for their own safety. However, had I read this novel when I first bought it, I am not sure if I would have been able to fully appreciate this powerful testament to those men and women, white and black, who risked their freedom and too often their lives to fight for justice. But with 30 year’s perspective, the hard won experience of middle age and the political changes that have marked South Africa in deeply complicated ways both positive and negative – as history tends to unfold in real life – this is one of the most rewarding reads of the year for me to date.

Ms Gordimer’s writing is rich, complex and worthy of a careful read. The shifting perspectives take the reader in and out of internal monologues that Rosa Burger, the daughter of a doctor and Communist activist who has died in prison, holds with the many individuals she encounters or remembers as she struggles to find an identity for herself in the huge shadow cast by her famous father (a fictionalized tribute to the lawyer who defended Nelson Mandela). In the infinite wisdom of Wikipedia, Burger’s Daughter is described as historical fiction. Of course, it is no such thing. Rather it is a time capsule, a deliberately political novel, but written without the advantage of knowing that Mandela would walk to freedom, become President, and pass away leaving a society where so many still live on a razor’s edge even if the tapestry has changed.

The final pages of Burger’s Daughter paints an uncertain future. Yet like life itself, the novel is brimming with vibrant, colourful characters brought to life with keen and loving detail.  The complexity of the politics presented at the time of writing combined with the critical distance of three decades impressed me deeply. It takes courage to speak to injustice. Nadine Gordimer herself knew that her work not only took risks but would also be forever defined by her colour. Moving beyond colour, religion, ethnicity, culture, gender, ability, orientation or the myriad of other divisions we seem to be able to construct as to divide us as humans is a seemingly impossible task. But by taking that one piece to which a writer, by virtue of fate or circumstance, is able to address and telling the stories that matter, small changes may be possible.

“Writing is making sense of life. You work your whole life and perhaps you’ve made sense of one small area.” (Nadine Gordimer)

Nadine Gordimer was a writer of courage and I am ashamed that it took her death to bring her into my focus.

Time – too much or never enough

During the past year, I was haunted by an overwhelming pressure that I needed to be able to slow down, take stock of my feelings. I was becoming aware of a wall coming down between myself and my emotional grounding.

At work a toxic environment was brewing as our director became increasingly paranoid and unstable. My daughter was trying to impress an unreasonable employer at her own workplace while, at home, my son who has long struggled with his own mental health and addiction issues was going through an especially difficult, potentially violent series of conflicts with friends. Just to keep my head above water I was going through the paces. A familiar process. Single parents tend to develop this coping skill.

It is strange how life gives you time to reflect when you need it the most.

Summer grassAlthough I have lived with the ups and downs of a mood disorder for most of my life, a full manic break and diagnosis did not come until I was in my mid 30s. Until that time I felt like I was lost at sea, battling waves I could not put a name to, but hanging on and, as much as possible, faking my way through the years. After all, unless you know better, you figure that everyone else is essentially doing the same thing.

With the diagnosis and other critical underlying issues that subsequently came to light, my life started to make sense. I felt I had some answers, some sense of a guideline. It was not an easy prescription and there were costs, including the end of a long marriage, but I prided myself that I had persevered, that I had survived. Although I was late to the game I was able to build a career that allowed me to support my children, buy home and start to put away some money for the future.

Now the reality of the diagnosis has cruelly returned to confront me leaving me unable to know if returning to the job I had is either possible or even desirable. I find myself re-evaluating what I want for myself.

Something that haunts me this go round is the notion that people with mental illnesses, bipolar in particular, have a shorter life expectancy. Although the reasons, methods of study and populations under consideration is not clear this is not a factor I ever considered before. Funny thing, we are bombarded with the message that we have to be prepared to support ourselves financially for longer than previously expected and yet we see people die prematurely – of natural or unnatural causes – all the time.

Fact is, life offers no guarantees.

Read. Travel. Write.

Either everything has meaning or nothing has meaning.

Literary prescription: The Sound of Things Falling

I am now a few weeks beyond the significant manic episode that has ground my life and work to a halt and precipitated a sudden crash into depression, anger and frustration. The crisis did not happen overnight and the healing will take time but I feel some measure of relief that my ability to lose myself in a book has been returning. Some additional anti-anxiety meds are helping too but I am trying to remain open to literary whims – reviews, suggestions from readers I respect, stray quotes that catch my attention. It seems to be critical medicine for me.

Fortunately there is also that wellspring of rewarding fictional riches, The International Impac Dublin Literary Award. Each year nominations are commissioned from public libraries around the world to create an extensive longlist from which a shortlist of 10 titles is ultimately drawn. It is inevitable that works in translation tend to feature prominently both  in the shortlist and among the archive of winners. Purists can argue over the Booker all they want, this is the award I watch.

winner_slide_2014This year’s winner, just announced in June, is The Sounds of Things Falling by Colombian author Juan Gabriel Vasquez, translated by Canadian Anne McLean. This book had been waiting on my ereader for some time, but in light of its recent honour, I thought it might be time for a closer look. A few pages in and I was hooked. Billed as a literary thriller I was expecting a perhaps an entertaining diversion from my own troubles but in truth I soon found myself  deep in a remarkably intimate account of the impact that traumatic experiences have on those directly effected and those around them in ways we often are powerless to predict or prevent. Whether the trauma results from actions chosen or events over which an individual has little or no control the fallout over days, month and years can lead to fateful decisions, ruptured relationships and deep wounds. At the core of this novel are two strangers, brought together through an act of violence who find temporary refuge in a sharing their own experiences of coming of age in Bogota at the height of the drug fueled wars of the 1970 and 80s.

Personally, as I struggle to make sense of the pressures, stresses and events that collaborated to make such a mess of my recent months, it is difficult not to vacillate between anger and regret. Although I know that mood disorders play havoc from the inside out and that the person who is suffering knows something is wrong, they may be slow or even unable to define the nature of the condition, and most certainly incapable of stopping it on a dime. Playing the “if only” card serves no significant benefit. As Vasquez’s narrator Antonio muses as he sets to record the experiences he wishes to share:

“There is no more disastrous mania, no more dangerous whim than the speculation over roads not taken.”

I was able to lose myself in this novel but it did not serve as quite the distraction I expected from a “literary thriller”. There was a disturbing real world resonance that I could not have anticipated. The Sounds of Things Falling is more than simply a title, it is an experience repeated and echoed throughout the novel. From a airshow stunt gone terribly wrong, to a fatal drive by shooting, to the devastating crash of a jetliner. Because a key character was a pilot, de Saint-Exupéry‘s The Little Prince also features as a beloved childhood tale. It was disturbing to imagine the little prince asking the pilot if he also fell out of the sky when bodies were literally falling out of the sky as Malaysia Airlines MH17 exploded over a disputed region of the Ukraine.

Trauma, small and personal or wide-reaching and global and all shades in between have always marked human existence. It divides and unites us in large and small ways. the complexity of that experience is, for me, one of the primary themes explored in this worthy literary award winner.

Negotiating tangled emotions

The aftermath of madness leaves its own measure of grief.  Because the manic end of the bipolar experience is by nature expansive, the episode is rarely one that occurs in isolation. At the very least, strange, anxious and pressured calls are made. Sometimes to strangers. Sometimes to those you know. Friends and families may observe the cracks as they start to spread. The first tremors may be intermittent. They can look like occasional or periodic moments of stress – the bad days anyone can have. When things start to spiral out of control I suspect it is already too late. For the person inside the experience, the pressure, the racing thoughts, the inability to sleep or find relief from the escalating crisis becomes a space in which all perspective is lost.

And generally there is damage.

At the most severe there can be serious physical harm, violence toward the self or others. More typically major manic episodes impact relationships, bank accounts or jobs, sometimes beyond repair. Yet in the middle of it all is a person who is very ill, who will need time to recover physically and emotionally for whom there is frequently very little understanding or sympathy. Especially when they are isolated.

14629062611_de5f459467_zAs I struggle to cope with the rotating cycles of sadness, embarrassment, anger and fear following my recent breakdown I am aware that because no one from my workplace has contacted me, no one has any idea how severely ill I have been. They just remember the last days of fractured functioning before I was finally able to get away from the office. Four weeks later I am exhausted, still unable to regulate my sleep and uncomfortable driving beyond my immediate neighbourhood. When I am deemed well enough to return to work my employers will be able to imagine this “illness” was all a convenient ruse and I have reason to believe it will be held against me. The nine years I worked there and the senior management position I held under increasingly toxic work conditions will mean nothing because it was always an environment in which your work was never acknowledged or appreciated. My mistake was to care enough to stay because I believed in the work we were doing.

The emotional roller coaster is the worst. It is interfering with the comfort and enjoyment I have always found in reading and photography. It finds me moaning and wallowing in self pity when I’m not trying to push grief and anger behind me. And my young adult kids and 80 year-old mother deserve a break from having to listen to it all.

And I would much rather be blogging about books and ideas, not the black heartache of depression.

What lies ahead?

Along the forest trailI took this photo almost a month ago. This trail near my home runs up and down along a steep embankment above a major river running through the large modern city I call home. It exists as an oasis of mountain magic lingering east of the Rocky Mountains. Today I could not possibly negotiate my way over the ubiquitous tangles of roots that emerge without warning on such forested trails. Although my health improves every day, I am stunned by how devastating the process of recovering from the brink of a full manic break has been on my ability maintain any degree of physical equilibrium. At the worst I was toppling over at a moment’s notice and hobbling along after my 24 year-old son as if I was in my 80s or 90s. This morning I actually managed a 10 block walk to Starbucks on my own. I no longer lose my balance when I turn my head and could even stoop to photograph a few renegade alley flowers along the way. Maybe I will even make serious headway in the novel I was reading before I crashed a few weeks ago.

But the question then begins to take on a more critical long turn.

What lies ahead?

And is this a path I am prepared to commit to knowing that the dysfunctional elements that ultimately contributed to my break down are deeply embedded into the structure of the work environment that I am, at this time, expected to return?

If I hated my job, the answer would be simple. But for nine years I loved my work, looked forward to the challenge, cared deeply for the cause, the clients, my co-workers and community colleagues. However, sometimes hard work and achievements mean little if the last impression you leave is of someone who is over tired, over worked and processing at lightening speed. You are assumed to be crazy, not ill. And labels once granted still await even once you cross the bridge to recovery.

Roughed up ghost

I started this blog with the idea that it would be a medium for some idle musings, some reflections on some of the random topics that attract my attention. Maybe the odd book review when something really grabbed me and deserved a little verbal leg up.

Then, not even a month after my modest entry into the wold of blogging, life has inserted its own stubborn editorial prerogative. I have crashed, head on, into a brick wall.

JMS 2012

The wall you see here is a memorial remnant to mark the location where a major hospital that was deemed redundant was collapsed in a most spectacular implosion. The government orchestrated the event in a zest to balance the books with total disregard for the awkward fact that that people do get sick. I took this photograph two years ago simply as an artistic statement. Then last week I allowed an illness I have long lived with to bring me to the brink of hospitalization.

I have bipolar disorder. It’s not a secret and I rarely give it a second thought. Diagnosed after a most spectacular manic break in my mid-30s I responded well to medication and never looked back. To appreciate the genesis of this recent setback one has to look back a good year and a half. For nine years I have worked with small not-for-profit agency serving adults with brain injuries. I have loved my job. We help people accessing benefits, advocate for services, and adjust to the sudden impact that severe injury brings to the survivor and their families and friends.

But lately there had been something out of sorts. The Executive Director began forgetting to issue invoices and pay bills. His behaviour became increasingly erratic and unpredictable. As the senior management staff member my workload multiplied as I sought to cover his shortcomings and meanwhile, on behalf of the staff, I had to try to encourage the Board of Directors to issue at least some kind of thorough review. Instead they paid him out, congratulated themselves on a job well done and left it to myself and another key staff to fill in the gaps. With such an increasingly unmanageable forest of papers and emails threatening to bury me alive I brought work home and worked through the evenings and weekends. Sleep all but evaporated and soon I was, well, running on high octane. And not in a good way.

The realization that I was on the doorstop of mania was a shock when I discovered my empty pill case. I had been stable for 18 years. Under medical advice I have requested stress leave but it has become clear that the mental health stigma is alive and well. Of course it doesn’t help that as my mood escalated my behaviour began to appear increasingly bizarre. I can’t take that back, but such is the illness. Consequently I have been referred to as unstable, unreliable, incompetent. It is unlikely that a return will be feasible.

As the longest serving staff member, my heart and soul were bound to the vision of this agency. At this moment, my ghost is not only roughed up, but fractured. And I am not even a strong believer in a soul but there is some soul-shaped hole in my heart right now.

Will mental illness ever be understood as an illness of the body like any other?

 

The Accidental Blogger

Okay, quite simply, I wanted manage some WordPress blogs I have been following, which all happen to be of a literary nature. Apparently I needed to create an account. Now I could have gone just created an account sans blog, but then what would the challenge be in that? Maybe I have some thoughts worth sharing. At the very least I can always talk about books. And if I am at a loss for words I can always throw in one of my photographs…

Image

Like this.