Remembering a friend on World Mental Heath Day

When I started this blog in 2014, I was reeling in the aftermath of a major manic episode. One that effectively cost me my career. My early posts were angry, fueled by the shame and trauma of having endured such a public breakdown, and the complete insensitivity of my employer, a situation compounded by the fact that I had worked in the disability and mental health field and had never denied my own mental health history. But when I needed someone to step in and guide me to medical care there was no one.

On this day it would be good to stand up and say: Yes, I’m a survivor. Truth is, I’m lucky. I respond well to a long standing medical treatment (if I’m not so reckless as to believe I don’t need it) and I was able to coast for about seventeen years between breakdowns and, after losing everything in my mid-fifties, finally access solid supportive psychiatric and psychological care.

Over the past year I have needed that support twice when stability waned.

That’s actually a rather dismal situation, truth be told, but like I said, I am lucky, I respond well to medication and compared to many other people with bipolar disorder, I’ve been able to function well—most of the time. My son has faced much greater obstacles.

But today I want to talk about Ulla.

When I appeared online as a rough ghost, I quickly became connected with a group of fellow bloggers dealing with mental health challenges. Ulla, who went by the name Blahpolar was funny, outrageous, tragic, and queer. She lived in South Africa, a country I had long been interested in, and she was a huge fan of Canadian literature. We bonded almost instantly. We could joke and riff off each other as if we’d been friends forever. A little more than a year after we met online, I flew to South Africa and spent a week with her in the Eastern Cape Province. We were as comfortable together in person as we had been online.

But Ulla was struggling.

She had had a rough life. Her illness had only been diagnosed recently, at age forty-five. But the damage ran deep, complicated by so many factors. And yet she was one of the most  gifted writers and wonderful people I ever met.

By the time I got to know her she was unable to work, living on saving s in a small house she’d inherited from her mother, in a remote seaside community. But the blackness was closing in fast, even at the time we met. Every rand stretched, she tried everything she could afford to fight it off.  No treatment—not even shock therapy—seemed to have any effect.

She survived the first suicide attempt. Succeeded the second time, a little over three years ago now.

I say “succeeded” because it is selfish of me to insist that a woman of forty-six, who has waged many long and bitter battles, does not have the right to say: I cannot live this way. But it breaks my heart that she is gone, and angers me that in the end, she had to die alone.

Miriam Toews’ All My Puny Sorrows was her favourite book. A bold plea for assisted death for those with severe depression who see no other option.

Who has the right to weigh another’s pain?

Unaware that World Mental Heath Day was approaching, I pulled out the elegy I wrote for her the other night and tried to read it through. When I composed it, three months after her death, I was numb. My parents had died less than two months before her and all those losses were deeply intertwined. They are only breaking loose now.

I can’t get through this piece right any more. A sob rises in my chest just thinking about it. But on his day I wish to share it once again.

It is the best way to honour my friend Ulla. And everyone else who has reached the point where they felt no option but to join “that nocturnal tribe.” One should not wish that on anyone, but we cannot judge them. Least of all those of us who have known some measure of the pain depression and bipolar can bring. We can only try to ensure that support, understanding, and services are available for those who need it.

So, once again, for Ulla Kelly, And I Will Tell You Something.

Remembering my father and the gift of a love of literature

My father was born on this day, April 26, in 1928. Marking his birthday for the first time since his death last July is bittersweet. My father was a difficult man, he rarely played with us or talked about his childhood—I would not even begin to appreciate why he was this way until I was in my 40s—but he gave me my love of literature. He would regularly run out on Christmas Eve and bring home books especially for me, starting me early on children’s abridged classics: Hans Brinker, Treasure Island, The three Musketeers and my very favourite, Tales of King Arthur and His Knights of the Round Table. I have spent the past few months combing through his library as we clear out our parents’ house. I selected the books that were suitable for donation to charity, decided which were not worth saving, and brought home the books I could not part with.

My father loved history, poetry and Russian literature. Much of the poetry I had already acquired, piece by piece, over the years; the war history will, I’m confident, find new homes; and I saved for myself his Russian lit (more Gorky than I expected) and his fancy editions of Western literary classics. I have gathered his Russian collection on a small shelf in my office and hope to salvage language from these books to create an experimental composition in his memory. But, as I made my way through his library, I found a few little treasures that speak to his years in New York City in the 1950s—a magical time he was forever trying to get back, long after that New York was gone.

He was in his early 30s when he was finally able to attend university. His parents were not supportive of academic pursuits. He studied electrical engineering and would never complete his degree for lack of funds, but while he was at Columbia his great joy was to write for the student newspaper. He reviewed opera and concerts. He would have been well suited to the life of an academic if he had had the support to take an Arts degree. But that was not to be although he would go on to be a highly respected, if difficult, electrical designer and contractor. Among his books I found a program of concerts from 1950–51, along with a charming contest entry for a chance to win an “Easter outfit,” and a couple of mini pamphlets of “The Raven” and “Annabel Lee” (the last book he gave me a few years back was a complete collection of Poe’s poetry and prose).

The process of sorting through my father’s books, left me with a clear image of him haunting secondhand bookstores throughout his life. My favourite find was a copy of a red hardcover called Modern European History by Charles Downer Hazen. Published in 1917, the first owner left his name inside the cover. I don’t know who accidentally burned through the binding, but my father left calculations inside the back cover—not simply solving math problems, it looks like he was tracking the number of pages he was reading.

My father had a thing for numbers, he tracked the temperature and the stock market figures every day right through to the end—not so much out of an interest in the markets as far as I know—but as a little bit of mental exercise. He was afraid of dying and even more afraid of mental decline. I’ll have to keep counting for him. Today he would have turned 89.

Beginning to write through grief: A reflection & link to my poem at the Sultan’s Seal

I am, as many know, dealing with a multi-layered, complex grief—my mother, my father, and one of my closest friends—all lost within the last six months. When my parents died in July, I entertained an immediate grief project, my own mourning diary, an echo of Roland Barthes. I started with a subdued passion, an ache as intellectual as emotional. In truth, my emotions were, I can now see, constrained and intellectualized.

I was numb.

Others reached out to me in those early weeks, sharing their own stories. The terrain of grief is rocky, I was warned. The journey long. The pain uneven. But, although I am in mid-life, a loss of this nature—doubled and complicated—was something I had never faced.

Then my friend took her own life sometime on September 1st. Even though I knew, in my heart, that such an event was almost inevitable, the pain and anger tore me apart. I knew she had tried every available option she could afford to fight an erratic and devastating variation of bipolar disorder, and I fully respected her decision and her right to make it. But suddenly my world was a darker, lonelier place.

And she had lived half a world away.

Again, the first thing I thought of was to write. This time, my distance from her demanded and informed my need to write—and I knew exactly what I wanted to do. I wanted to gather words and sentences from her writing and our communications, and together with some photographs from my trip to visit her in South Africa, create an elegy.

An offering.beach

Drawing inspiration from a prose piece by Breyten Breytenbach, and the sound driven writings of my friend, Daniela Cascella, I set to work. And I knew exactly where I wanted to publish this memorial if I was able to realize my vision—The Sultan’s Seal, a most wonderful space created and curated by Egyptian writer, Youssef Rakha.

The result, “And I will Tell You Something,” was published this past weekend. Three hundred words, five images and almost three months shaping, reshaping, listening and accepting the silence that emerged. This is perhaps the most emotionally demanding piece I have ever written. Yet, now five days after my words were finally set free in the world, I feel a tremendous sense of rightness. An element of peace. I still ache, but, with this prose poem, I feel I can begin to heal.

And I hope that others may find something in it too.