There is a question tends to haunt those of us who live with mood disorders, especially in the early months of adjusting to a diagnosis or in the aftermath of breakdown:
Who Am I?
There is this persistent fear that, if the highs and lows of this “disorder” should ever hit equilibrium, what will be left?
And will that stable “me” be the real me or a medicated artifact?
The theory is that mood disorders are typically associated with “normal” periods but as most of us know, mania and depression can simmer under the surface, felt rather than observed for a long time. When symptoms burst through resulting in “abnormal” thoughts, actions and behaviours, those around us rarely understand that these are beyond our control. And because insight is impaired, when we are at our most unstable we are often the last to know just how far off the rails we have run. All this is further complicated when a mood disorder exists in conjunction with addictions or trauma or other chronic conditions.
Having a mood disorder is like living with ghosts.
But we own those ghosts. They are us. Everyone has them.
Ours just like to try to steal the stage, set the agenda, write the script and direct the show.
Maybe that is why I am drawn to so much fantastic literature lately… allowing the ghosts of others to distract me from my own.
If you are a bit of a news junkie like I am, there is a lot of bad news on our TV screens and computers each day. Violent political upheaval, deadly viruses, floods and fires. But it is scattered and for so many of us our complaints are relatively minor, isolated. What if the signs suddenly started to rapidly multiply and spread across continents and communities. Would it herald the end of the world? Would we know or even agree on the meaning of the signs? Assign them to God, reduce them to science?
Translated by Will Firth
Istros Books, available through Dzanc Books in North America
The Coming, a wonderful novella by Montenegrin novelist Andrej Nikolaidis explores such questions from a rather unconventional perspective. Our hero is a private detective, a small town Philip Marlowe based in the ancient city of Ulcinj. He finds himself most comfortable providing his clients with the answers they want, regardless of whether or not he even manages to find the truth behind a crime or infidelity. This approach makes him popular with the locals who prefer to approach him rather than the authorities. Consequently the quiet life he seems to desire tends to allude him. As the book opens he has become obsessed with the particularly brutal murder of an entire family which appears to have coincided with the burning of the local library.
Yet even stranger phenomena begin to threaten his routine. Snow starts to fall in June and does not let up. Around the world catastrophes – earthquakes, floods, raining amphibians – are reported with alarming intensity. Is this the Apocalypse, is the Second Coming finally at hand?
For our poor detective who faces this most peculiar string of circumstances with cynical humour and frustration, there is an added factor. Emmanuel, a child he fathered during a brief affair with an irresistible client, is now grown and has tracked him down from an asylum in the Alps where he has been confined after some serious mental breakdown. Through a series of emails Emmanuel shares details of his childhood with the father he has never met and offers his curious knowledge of messianic mystics, millennial cults and numerous attempts to calculate the date of the end of the world throughout western history. Perhaps because he himself has a mental illness, Emmanuel interprets the reported behaviours of many cult members or their charismatic, wildly erratic leaders in reference to what would be probable modern psychiatric diagnoses.
For myself, personally, in the months that followed my diagnosis with bipolar, I struggled to make sense of the role of my illness in the intensely spiritual experiences that I had periodically encountered growing up. During full blown psychosis, I could imagine that the frantic notions that I had the answer to the meaning of life were indeed in keeping with mania. I had the cramped and panicked nonsensical documents to prove it. But what about the earlier visions and spiritual experiences? Far less dramatic, frequently beautiful, these moments had filled me with such an assurance of the existence of God that I completed an honours degree in philosophy without once being troubled by any ontological questions. I could argue for or against the existence or nature of God while my own personal spirituality remained intact.
However, as I started to read about psychotic symptoms, I began to recognize similar features in the visions of Biblical prophets, the martyrdom of saints, the trance states of mystics and other ostensibly spiritual experiences. I could not divorce my own experiences from an underlying framework of biochemistry. My sense of personal faith crumbled.
Over the years as I have watched good people of faith rejected by their churches following mental breakdowns, I have been increasingly concerned by the double standard. After all who draws the line between mystical vision and clinical madness?
The Coming sees no need to draw those distinctions. I loved the way the pragmatic emails from the detective’s estranged son reach out to a world that may well be facing its final hours with the observation that the human desire for an Apocalypse can be compared to our urge to fast forward through a detective movie because we can’t wait to see how it ends.
We want answers – but we those answers to come from God or from science, not from the visions of those who are determined to be not in their right minds.
We have all heard this expression, probably said it ourselves if we are parents. Somehow, today, as we continue to simmer in the aftermath of the news of Robin William’s tragic suicide on Monday, this is the thought that keeps coming back to my mind. For those of us who live with the very harsh reality of a mood disorder his death holds a special poignancy. So does the inevitable, endless discussion that only unexpected celebrity death seems to be able to generate.
I am presently on sick leave after a severe manic episode and although I feel the worst of my own suicidal ideation has passed, the extreme mixed state I passed into as medical resources were amassed to put the brakes on my mania was the worst I have known to date. I relied heavily on the local Distress Centre at all hours of the day and night and as much as practical on my elderly mother and young adult children. Otherwise I was intentionally and completely ostracized by my employer and they have yet to follow up on my well being. Still I feel fortunate. Robin Williams and countless others are not so lucky.
In the wake of his death, everyone seems to be turning in to look at the darkness haunting so many seemingly outgoing, humorous, entertaining and outgoing individuals. It seems to me like the attention is so keenly focused on depression and addiction. But when he was working all out, brimming with manic energy the danger signals were just as evident. But we were too busy laughing, crying, and being entertained to be concerned. It’s all fun and games…
Another public media post mortem comment that disturbs me is the observation some people have made that he seemed to hide behind his characters, whether in his improvised comedy or the countless powerful and engaging individuals he portrayed on screen. From this they extrapolate that it is as if he was hollow inside. As if only an individual so empty and devoid of being could ever be driven to take his or her own life! I am no expert on Robin Williams, I never met him, but I would not be surprised to learn that he was a deep and intensely private man. Probably shy and insecure too.
For many people who grow up with an inclination to conditions on the mood/anxiety disorder spectrum, there is often a lot of social isolation. I know from my own experience and that of my son, social interaction does not come naturally to some of us. The need to compensate can drive such people to the creative arts – drama, music, literature for example. Likewise such individuals can be drawn to academic pursuits where energy and intellectual drive can lead to striking success. After all, there can be long periods of essentially “normal” function, especially if one avoids the trap of alcohol or drugs as a means to cope.
From my own recent experience, it seems to me that our western society, rewards the mildly manic. Over the past nine years I worked at a small agency where I routinely held the largest and most complex caseloads and took on any extra assignments placed on my desk. I developed programs, trained staff. I was rarely sick and frequently had to struggle to squeeze my allotted vacation time in before year end. I loved my job.
At home I was a single parent with two teenagers, each with their own special needs. There was whole full time round of responsibilities that fell into play outside the office. Then about a year ago things at work got crazy. The Director was exhibiting signs of significant cognitive decline and it was left to myself and a junior staff to monitor and report on the increasingly toxic state at the office while the Board of Directors tried to decide what to do.
As senior management I took the brunt of the responsibility, workload and, ultimately, abuse. I became irritable, overwhelmed and distressed – big time manic. Although I had always been open about my bipolar diagnosis no one recognized the warning signs until a chance comment about how fast I was talking hit me like a ton of bricks. I immediately pulled myself out but by then it was too late. And it is all still seen as entirely my fault, my failure to control my behaviour.
I wasn’t funny, no one was laughing and I am the only one who lost an eye, figuratively speaking of course.
In the early weeks of my sick leave I remember thinking that if I took my life, maybe my employers would realize how truly sick I had become. Of course it would have only reinforced my madness and saved them the complication that as a disabled person I have human rights protection.
Loveable madness is remembered fondly. Margot Kidder digging garbage out of an alley is not. On a more horrific level, the nice ordinary person who seems to suddenly snap and takes the lives of family or strangers is not. However mental illness is a critical subject that we cannot afford to ignore.
After all, it’s all fun and games until somebody loses a life.
For some 30 years I have packed and unpacked, shelved and reshelved a library full of books that I have not yet read but would not dream of carting off to a charity sale. Naturally I assume that the day will come when that book will come to my attention and, conveniently I will have it at hand. Of course, in the meantime a wealth of new books have joined my libraries, actual and electronic, so that all those long held treasures run the risk of absolute obscurity. I suspect more than a few book addicts can relate.
And sometimes the tendency to hoard a book pays off, though sadly that time is too often heralded by the death of the author.
I must have purchased Nadine Gordimer’s Burger’s Daughter, in the very early 1980s. I was studying anthropology and working part-time in a bookstore. South Africa and the struggles against Apartheid would have held a particular resonance for me through the presence of a number white South African ex-patriots who had found their way to the Anthropology department of a Canadian university for their own safety. However, had I read this novel when I first bought it, I am not sure if I would have been able to fully appreciate this powerful testament to those men and women, white and black, who risked their freedom and too often their lives to fight for justice. But with 30 year’s perspective, the hard won experience of middle age and the political changes that have marked South Africa in deeply complicated ways both positive and negative – as history tends to unfold in real life – this is one of the most rewarding reads of the year for me to date.
Ms Gordimer’s writing is rich, complex and worthy of a careful read. The shifting perspectives take the reader in and out of internal monologues that Rosa Burger, the daughter of a doctor and Communist activist who has died in prison, holds with the many individuals she encounters or remembers as she struggles to find an identity for herself in the huge shadow cast by her famous father (a fictionalized tribute to the lawyer who defended Nelson Mandela). In the infinite wisdom of Wikipedia, Burger’s Daughter is described as historical fiction. Of course, it is no such thing. Rather it is a time capsule, a deliberately political novel, but written without the advantage of knowing that Mandela would walk to freedom, become President, and pass away leaving a society where so many still live on a razor’s edge even if the tapestry has changed.
The final pages of Burger’s Daughter paints an uncertain future. Yet like life itself, the novel is brimming with vibrant, colourful characters brought to life with keen and loving detail. The complexity of the politics presented at the time of writing combined with the critical distance of three decades impressed me deeply. It takes courage to speak to injustice. Nadine Gordimer herself knew that her work not only took risks but would also be forever defined by her colour. Moving beyond colour, religion, ethnicity, culture, gender, ability, orientation or the myriad of other divisions we seem to be able to construct as to divide us as humans is a seemingly impossible task. But by taking that one piece to which a writer, by virtue of fate or circumstance, is able to address and telling the stories that matter, small changes may be possible.
“Writing is making sense of life. You work your whole life and perhaps you’ve made sense of one small area.” (Nadine Gordimer)
Nadine Gordimer was a writer of courage and I am ashamed that it took her death to bring her into my focus.
There is a dish which has become ubiquitous in Canada – fries smothered with gravy and cheese curds – the French Canadian artery clogging delight called poutine. Many years ago when I lived in Ottawa it was a treat to cross into Québec, follow some back road instructions to a truck, seemingly parked in the middle of nowhere and order the authentic dish complete with cardboard container and plastic fork. Personally my tastes have changed in 30 years, so while some version resembling poutine can be found at most of your favourite fast food haunts, but I will leave you to it. My kids, on the other hand, love gravy – with or without the cheese curds.
Today my wish for my son is gravy. At 24 he has been struggling with an addiction to alcohol for several years. He is aware that underlying the addiction is the mood disorder that knits so much of our family together. Yet his experiences in anything resembling conventional mental health care have been quite horrific for an intelligent, gifted child. As far as he is concerned, alcohol is preferable to medication or therapy. I can appreciate where he is coming from but I chose to take my risks with the prescribed meds and I have been spared the temptation to turn to alcohol that has marked many other family members over the years. Not that it has prevented me from falling ill again but life has no guarantees.
Living with mental illness is not easy. Addiction adds to the burden. But I love my son unconditionally and understand that, in the end, his life is his own and he is the only one who can really come to terms with his own blessings and curses.
Lately we have been fooling ourselves with the idea that he can maintain a minimal alcohol intake and get by. However, this morning after a night of heavier drinking and the inevitable conflict such situations evoke, he finally admitted that he cannot live without alcohol and that it is interfering with everything he wants in life. He poured out every remaining drop and gathered all the empty cans and bottles to return.
Will it hold? It is a critical start, as close to bottom as I have seen him reach to date. So I want to offer him gravy. Poets, artists, musicians and writers who nursed their muse with alcohol or drugs are well known and a tragic number paid a steep price. But I want to offer my son Gravy, a poem composed by the incomparable Raymond Carver after a diagnosis of cancer. Although illness took him early it was not for alcohol – that was a battle he won and was rewarded with the time to create a body of poems and short stories that have inspired and moved so many. And that is a victory he celebrated as, of all things, gravy:
No other word will do. For that’s what it was.
Gravy, these past ten years.
Alive, sober, working, loving, and
being loved by a good woman. Eleven years
ago he was told he had six months to live
at the rate he was going. And he was going
nowhere but down. So he changed his ways
somehow. He quit drinking! And the rest?
After that it was all gravy, every minute
Excerpt from Gravy by Raymond Carver, All of Us: The Collected Poems, edited by Tess Gallagher, Vintage (1996)
During the past year, I was haunted by an overwhelming pressure that I needed to be able to slow down, take stock of my feelings. I was becoming aware of a wall coming down between myself and my emotional grounding.
At work a toxic environment was brewing as our director became increasingly paranoid and unstable. My daughter was trying to impress an unreasonable employer at her own workplace while, at home, my son who has long struggled with his own mental health and addiction issues was going through an especially difficult, potentially violent series of conflicts with friends. Just to keep my head above water I was going through the paces. A familiar process. Single parents tend to develop this coping skill.
It is strange how life gives you time to reflect when you need it the most.
Although I have lived with the ups and downs of a mood disorder for most of my life, a full manic break and diagnosis did not come until I was in my mid 30s. Until that time I felt like I was lost at sea, battling waves I could not put a name to, but hanging on and, as much as possible, faking my way through the years. After all, unless you know better, you figure that everyone else is essentially doing the same thing.
With the diagnosis and other critical underlying issues that subsequently came to light, my life started to make sense. I felt I had some answers, some sense of a guideline. It was not an easy prescription and there were costs, including the end of a long marriage, but I prided myself that I had persevered, that I had survived. Although I was late to the game I was able to build a career that allowed me to support my children, buy home and start to put away some money for the future.
Now the reality of the diagnosis has cruelly returned to confront me leaving me unable to know if returning to the job I had is either possible or even desirable. I find myself re-evaluating what I want for myself.
Something that haunts me this go round is the notion that people with mental illnesses, bipolar in particular, have a shorter life expectancy. Although the reasons, methods of study and populations under consideration is not clear this is not a factor I ever considered before. Funny thing, we are bombarded with the message that we have to be prepared to support ourselves financially for longer than previously expected and yet we see people die prematurely – of natural or unnatural causes – all the time.
Fact is, life offers no guarantees.
Read. Travel. Write.
Either everything has meaning or nothing has meaning.
It should be a luxury to be freed from the demands of a regular work schedule, with no shortage of books to read and time to stop and reflect on where one is at in life. In fact that is the mandate, so be it, of my present circumstances. I am on sick leave with no pressure to return to the workplace and an expectation of a reasonable income to see me through the next few months. At the moment I know I am too fragile to consider working anywhere and my employer has been less than forthcoming as to whether they foresee a place for me in the future. I just know it would be reckless to engage in any employment related discussion or decision making for a while yet. So I find myself with time on my hands.
I should be reading more. Yet I feel like I read more when I had barely a minute to spare.
I have been cocooning myself with stacks of books and, like any book addict, have continued to browse for and purchase more. I have four underway – two old school paper format, two electronic – one serious literary, one non-fiction, one genre fiction and a collection of short stories. Each one is excellent but I seem to be struck with some inability to stay put without great anxiety building and the sense that I should be somewhere else. Or rather in some other book. So I put down one and pick up another.
Sometimes I try to take a walk, grab my neglected camera hoping to find inspiration, or at least distraction, in these gorgeous summer days. That’s what I did today, but I happened across a sidewalk sale outside the most fantastic bookstore along my way and came home with six more books!
I’m not used to anxiety. It seems to eat away at an ability to focus in a way that neither the ups or the downs of my regulated mood disorder ever has. The overwhelming sense of unease, the unknowns, the uncertainties appear to be keeping me from finding solace in the written word.
Hopefully this shall soon pass because it would be a crime to worry away such valuable reading time.