There is a question tends to haunt those of us who live with mood disorders, especially in the early months of adjusting to a diagnosis or in the aftermath of breakdown:
Who Am I?
There is this persistent fear that, if the highs and lows of this “disorder” should ever hit equilibrium, what will be left?
And will that stable “me” be the real me or a medicated artifact?
The theory is that mood disorders are typically associated with “normal” periods but as most of us know, mania and depression can simmer under the surface, felt rather than observed for a long time. When symptoms burst through resulting in “abnormal” thoughts, actions and behaviours, those around us rarely understand that these are beyond our control. And because insight is impaired, when we are at our most unstable we are often the last to know just how far off the rails we have run. All this is further complicated when a mood disorder exists in conjunction with addictions or trauma or other chronic conditions.
Having a mood disorder is like living with ghosts.
But we own those ghosts. They are us. Everyone has them.
Ours just like to try to steal the stage, set the agenda, write the script and direct the show.
Maybe that is why I am drawn to so much fantastic literature lately… allowing the ghosts of others to distract me from my own.
We have all heard this expression, probably said it ourselves if we are parents. Somehow, today, as we continue to simmer in the aftermath of the news of Robin William’s tragic suicide on Monday, this is the thought that keeps coming back to my mind. For those of us who live with the very harsh reality of a mood disorder his death holds a special poignancy. So does the inevitable, endless discussion that only unexpected celebrity death seems to be able to generate.
I am presently on sick leave after a severe manic episode and although I feel the worst of my own suicidal ideation has passed, the extreme mixed state I passed into as medical resources were amassed to put the brakes on my mania was the worst I have known to date. I relied heavily on the local Distress Centre at all hours of the day and night and as much as practical on my elderly mother and young adult children. Otherwise I was intentionally and completely ostracized by my employer and they have yet to follow up on my well being. Still I feel fortunate. Robin Williams and countless others are not so lucky.
In the wake of his death, everyone seems to be turning in to look at the darkness haunting so many seemingly outgoing, humorous, entertaining and outgoing individuals. It seems to me like the attention is so keenly focused on depression and addiction. But when he was working all out, brimming with manic energy the danger signals were just as evident. But we were too busy laughing, crying, and being entertained to be concerned. It’s all fun and games…
Another public media post mortem comment that disturbs me is the observation some people have made that he seemed to hide behind his characters, whether in his improvised comedy or the countless powerful and engaging individuals he portrayed on screen. From this they extrapolate that it is as if he was hollow inside. As if only an individual so empty and devoid of being could ever be driven to take his or her own life! I am no expert on Robin Williams, I never met him, but I would not be surprised to learn that he was a deep and intensely private man. Probably shy and insecure too.
For many people who grow up with an inclination to conditions on the mood/anxiety disorder spectrum, there is often a lot of social isolation. I know from my own experience and that of my son, social interaction does not come naturally to some of us. The need to compensate can drive such people to the creative arts – drama, music, literature for example. Likewise such individuals can be drawn to academic pursuits where energy and intellectual drive can lead to striking success. After all, there can be long periods of essentially “normal” function, especially if one avoids the trap of alcohol or drugs as a means to cope.
From my own recent experience, it seems to me that our western society, rewards the mildly manic. Over the past nine years I worked at a small agency where I routinely held the largest and most complex caseloads and took on any extra assignments placed on my desk. I developed programs, trained staff. I was rarely sick and frequently had to struggle to squeeze my allotted vacation time in before year end. I loved my job.
At home I was a single parent with two teenagers, each with their own special needs. There was whole full time round of responsibilities that fell into play outside the office. Then about a year ago things at work got crazy. The Director was exhibiting signs of significant cognitive decline and it was left to myself and a junior staff to monitor and report on the increasingly toxic state at the office while the Board of Directors tried to decide what to do.
As senior management I took the brunt of the responsibility, workload and, ultimately, abuse. I became irritable, overwhelmed and distressed – big time manic. Although I had always been open about my bipolar diagnosis no one recognized the warning signs until a chance comment about how fast I was talking hit me like a ton of bricks. I immediately pulled myself out but by then it was too late. And it is all still seen as entirely my fault, my failure to control my behaviour.
I wasn’t funny, no one was laughing and I am the only one who lost an eye, figuratively speaking of course.
In the early weeks of my sick leave I remember thinking that if I took my life, maybe my employers would realize how truly sick I had become. Of course it would have only reinforced my madness and saved them the complication that as a disabled person I have human rights protection.
Loveable madness is remembered fondly. Margot Kidder digging garbage out of an alley is not. On a more horrific level, the nice ordinary person who seems to suddenly snap and takes the lives of family or strangers is not. However mental illness is a critical subject that we cannot afford to ignore.
After all, it’s all fun and games until somebody loses a life.
During the past year, I was haunted by an overwhelming pressure that I needed to be able to slow down, take stock of my feelings. I was becoming aware of a wall coming down between myself and my emotional grounding.
At work a toxic environment was brewing as our director became increasingly paranoid and unstable. My daughter was trying to impress an unreasonable employer at her own workplace while, at home, my son who has long struggled with his own mental health and addiction issues was going through an especially difficult, potentially violent series of conflicts with friends. Just to keep my head above water I was going through the paces. A familiar process. Single parents tend to develop this coping skill.
It is strange how life gives you time to reflect when you need it the most.
Although I have lived with the ups and downs of a mood disorder for most of my life, a full manic break and diagnosis did not come until I was in my mid 30s. Until that time I felt like I was lost at sea, battling waves I could not put a name to, but hanging on and, as much as possible, faking my way through the years. After all, unless you know better, you figure that everyone else is essentially doing the same thing.
With the diagnosis and other critical underlying issues that subsequently came to light, my life started to make sense. I felt I had some answers, some sense of a guideline. It was not an easy prescription and there were costs, including the end of a long marriage, but I prided myself that I had persevered, that I had survived. Although I was late to the game I was able to build a career that allowed me to support my children, buy home and start to put away some money for the future.
Now the reality of the diagnosis has cruelly returned to confront me leaving me unable to know if returning to the job I had is either possible or even desirable. I find myself re-evaluating what I want for myself.
Something that haunts me this go round is the notion that people with mental illnesses, bipolar in particular, have a shorter life expectancy. Although the reasons, methods of study and populations under consideration is not clear this is not a factor I ever considered before. Funny thing, we are bombarded with the message that we have to be prepared to support ourselves financially for longer than previously expected and yet we see people die prematurely – of natural or unnatural causes – all the time.
Fact is, life offers no guarantees.
Read. Travel. Write.
Either everything has meaning or nothing has meaning.
Okay, quite simply, I wanted manage some WordPress blogs I have been following, which all happen to be of a literary nature. Apparently I needed to create an account. Now I could have gone just created an account sans blog, but then what would the challenge be in that? Maybe I have some thoughts worth sharing. At the very least I can always talk about books. And if I am at a loss for words I can always throw in one of my photographs…