photography – Page 13

Moving fast to slow down

With respect to many fellow bipolar bloggers who are weighed down with depression I am fighting a mixed hypomanic state. This is a more common concern for me and although I have only been fully manic twice in my life, I can run at a heightened level for years. Looking back now I probably was running high over the past few years while I took on increasing responsibilities at work in an increasingly unsupported and dysfunctional environment before landing in full manic mode this past June. I have had access to little psychiatric support since then so between my family doctor and a private psychologist I splurge to see once a month I am trying to stabilize my level of agitation. Hopefully before my disability benefits run out.

At the same time this time has allowed me to unpack a lot of baggage and make some critical reassessments at this point in mid-life. On that level I am making progress. But my brilliant experience volunteering at Wordfest last month, meeting and engaging with so many readers and authors was a high risk experiment with respect to my mood regulation efforts. I barely ate or slept for four days after the event ended.

For all the energy these past weeks have added to my creative efforts, I have trouble concentrating and tend to fall into periods of high energy thought processing without being able to channel the ideas productively. I have been making a point of getting out and spending a few hours writing or reading in coffee shops. Being in public spaces forces me to focus.

However, the word is that winter is truly rolling in tonight with snow and temperatures dropping to the minus double digits celsius. Since I haven’t gotten around to getting my winter tires mounted I am not likely to venture far for a few days. So I decided to spend the last temperate afternoon out, not hunched over a coffee cup but walking off some of my pent up energy.

Typically I walk with my camera and my ipod. It is a slow pace as I find myself regularly stopping to capture scenes or flora. However I hadn’t realized how that actually narrows my experience of some of the locations I regularly visit. When I was working such an activity was a great way to relax and unwind. Since I have been off ill, I have had little enthusiasm for photography and little motivation to visit my favourite natural haunts as if one required the other.

Today when I reached the riverside where I planned to walk I felt momentary regret that I had neither my camera nor my ipod with me. But as I set off on a brisk walk in the late afternoon light of this November day I was surprised to find how freeing and meditative the experience was. The movement helped me slow and focus my thoughts while, freed from the viewfinder of a camera, I was able to take in the fullness of the vista. I watched the changing colours of the slowly fading light reflected in the water and on the glass towers of downtown in the distance. I noted the shifting clouds and birds flying in to roost as the depth of darkness and shadow crept across the fir trees that cover the length of the high embankment across the river.

I returned refreshed, relaxed and calmed.

The path I walked today as it is likely to look in a month or so. Copyright JM Schreiber 2012 — The path I walked today as it is likely to look in a month or so.
Copyright JM Schreiber 2012

What fresh yellow is this? (With apologies to Dorothy Parker)

Typically I love autumn – the crisper weather, the bright blue skies, the excuse to pull out sweaters. Normally this is the busiest time of the year as new programs and courses start and activities halted for the summer resume. More than New Year’s, this can be the season for resolutions, goal setting and looking forward.

Unless you are depressed.

Without the structure of work I feel lost. And unlike regular unemployment I am in a holding pattern, uncertain what type of work I may be able to return to when I do recover, if I recover, should I even recognize recovered if I meet it in myself.

I feel tired and agitated. Irritable and unfocused. I try to push myself out every day and have an exciting literary festival to look forward to in just over a week. Yet I am terrified that I have taken on more than I will be able to manage and I find myself fighting off regular amorphous panic attacks.

I feel like a wrung out dish towel. I miss having energy and enthusiasm but I have to guard against a reckless flood of these sensations lest they indicate trouble at the opposite end of the bipolar pendulum arc…

For now I am looking toward the brilliant yellows of the moment. Apparently yellow is the colour of the mind and the intellect, it lifts the spirit, stimulates creativity but can also heighten anxiety and emotional instability.

Sounds like a bipolar hue to me.

Some ghosts have rougher journeys than others

- Copyright JM Schreiber 2012 — – Copyright JM Schreiber 2012

O! WHY was I born with a different face?
Why was I not born like the rest of my race?
When I look, each one starts; when I speak, I offend;
Then I’m silent and passive, and lose every friend.

Then my verse I dishonour, my pictures despised,
My person degrade, and my temper chastise;
And the pen is my terror, the pencil my shame;
All my talents I bury, and dead is my fame.

I am either too low, or too highly priz’d;
When elate I’m envied; when meek I’m despis’d.
-William Blake, from a letter to his patron Thomas Butts, 1803

I first encountered these words in the months following my first manic breakdown in the late 1990s. With a diagnosis at hand I needed to understand its meaning so I read the standard popular memoirs of the time. But I found myself drawn into the work of William Blake. Although many readers reject the notion that madness may have fueled his tireless creative energies, his hours conversing with angels and his periods of darkness – I found comfort in his artistic conviction even if he was destined to die without ever receiving the recognition of understanding he deserved.

For every person who successfully rises above the challenges of mental illness and negotiates the pitfalls of drugs and alcohol, there are those who spend their lives living rough. And others who lose the battle altogether. But Blake drew inspiration from his angels and demons with his loving wife by his side until the end.

Today is my birthday, and having found myself back trying to figure out what I am supposed to learn from this second mania and unexpected fall from grace, Blake’s lament has a special resonance once again.

But this time I am reflecting on a very different face than that which I confronted 17 years ago. From the time I was very young I could not make sense of the face with which I was born. The eyes that looked out from within that visage threatened to give me away. The body I struggled to feel at home in never felt like mine. The girls I befriended seemed like aliens and, with no other explanation for my discomfort I assumed that I had never learned the tricks, never tried hard enough.

The idea that gender or identity could be misaligned never occurred to me when I was growing up. At least not in the context I needed to hear. And when It did start to seep into my awareness I was already well into marriage and motherhood. It was a complicated comfort to realize that there was an explanation for my feelings. It was even more terrifying to know what to do with this information.

I know well that my mood disorder runs back through my family, that it has a genetic basis somewhere. I have no idea what course it might have followed without this added sense of being out of step with rest of humanity. But my hospital psychiatrists were certain that my apparent gender dysphoria was simply a psychotic symptom that would resolve itself with the right dose of lithium.

They were wrong of course. Now, 17 years later, the average looking middle aged man who confronts me from the mirror is not special, but he is one I feel at home with. For many years I thought that was enough, as if I had found the magic bullet, the key to moving forward on all fronts. My family have been supportive, I recreated my identity and built a new career.

But I still found that the manic-depressive monster has followed me all along. Making sense of recovery this time around, I find myself doubly invisible. Behind a face that accurately reflects my sense of self identity, is a whole life I cannot fully share. Talking about being bipolar has been the easy part.

But moving forward from this birthday, I want to find a way to be whole.

The unbearable invisibility of being mentally ill

For years I worked with brain injury. Depending upon the cause, damage to the brain can mark the survivor with more or less obvious physical impairments. But frequently the greatest impact leaves no obvious trace on the outside. The injury takes its most significant toll on memory, behaviour and fatigue.

Not unlike mental illness.

For many who have never had direct experience of mental illness the tendency is to imagine the extreme – psychotic, eccentric, suicidal behaviour. But the reality is so much more complicated, so much more subtle and, on the outside it is often so apparently normal. Especially for those of us who live with anxiety and mood disorders.

We look like other people. We have lives, families, jobs when we are well enough. But sometimes those things are tenuous. And yet there is this inability to step away from the condition and observe it, no CAT scans or MRIs to chart the progress of the illness or mark remission.

Recovery is a slippery concept. It depends so much on how we feel.

And the deeper we look the harder it is to know exactly how we feel.

Aiming to see the bright side

For someone who recognizes the swings of bipolar disorder reaching back into late adolescence or early adulthood, I have had precious little acquaintance with depression. Unfortunately I remember it best as a stepping stone on the way to hypomania and, at worst, the door into a hallway leading up to eventual mania.

Now, on the heels of a drawn out period of manic and mixed state agitation I am settled into a pit of anxious depression. Bone weary I find it hard to sleep. With long days to fill I find it hard to focus. Plans and decisions loom on the horizon but I find it hard to concentrate. I make an effort to go out somewhere everyday but before long I feel nauseated and eager to get home. And now my psychiatrist is unavailable so my faithful doctor has set about looking for someone else to help me assess the effectiveness of the medication I have relied on for so many years, just in case it is time for a change.

And the thought of a medication change is about as comforting as the thought of having the carpet pulled out from under me without warning.

Copyright JM Schreiber 2014 No sign of last week's storm — Copyright JM Schreiber 2014
No sign of last week’s storm

Today I made my own small effort to take back some control. It was a glorious warm September day, with only the piles of branches that litter the streets, sidewalks and parks giving testament to last week’s unexpected snowstorm. I made my way downtown to the offices of Wordfest, our annual literary festival, to see if they might still have a need for any volunteers.

One advantage of my current inability to work is that for the first time in years I am free to take part in this major festival. Typically it coincided with the busiest time of year at my former job, so volunteering or attending events was impossible. Now I am committed to helping out with two events on the 14th of October. I was cautious to warn them that my energy reserves are uncharacteristically low at the moment but it is my sincere hope that in a month there will be a little more juice flowing. I can’t quite picture it getting worse.

In the meantime I have a plenty of reading to occupy my time in advance of the special visiting author events I hope to attend over the course of the festival. The support of my doctor and therapist is vital, I know, but Wordfest gives me a tangible goal to look forward to – an essential light at the end of the tunnel when everything else seems so uncertain.

Thoughts about redemption

“Emancipate yourselves from mental slavery;
None but ourselves can free our minds.
Have no fear for atomic energy,
‘Cause none of them can stop the time.
How long shall they kill our prophets,
While we stand aside and look? Ooh!
Some say it’s just a part of it:
We’ve got to fulfill the book.

Won’t you help to sing
These songs of freedom? –
‘Cause all I ever have:
Redemption songs.”

This song by the late Bob Marley has echoed in my mind frequently over the past month or so. Written after the diagnosis of cancer that would ultimately claim his life, it is thought to speak to his personal reflections on mortality. My own longing for redemption relates directly back to my inability to resolve the circumstances which led up to the extraordinarily manic behaviour that marked my final days in the office. And my inability to let it go.

What is redemption?

Disregarding the financial and transaction contexts by which the term is used, redemption is typically understood as:
n.
1. an act of redeeming or the state of being redeemed.
2. deliverance; rescue.
3. deliverance from sin.
4. atonement for guilt.

Looking at the news over the past few weeks, there are some very public examples of behaviour that can not be easily excused. The videotape of NFL star Ray Rice punching and dragging his unconscious fiancee from an elevator, the resignation of a Vancouver CEO caught on video kicking and abusing a puppy, and most recently another NFL player accused of excessively brutal corporal punishment against his own children are just the latest in a litany of public figures behaving badly. Unfortunately, they might have been met with relatively minor reprimands had there not been videotapes or pictures and an element of public shaming.

How many sports heroes, businessmen, politicians and celebrities have been brought down by grossly inappropriate, violent and even illegal actions only to eventually find redemption in the public eye? Many, have found such redemption more than once.

But what if your only “sin” is to have become ill due to a mental health disorder, where does redemption come from? I don’t even know what I want anymore. I have tried to apologize for my behaviour which I know was highly agitated and unpleasant, but there is no way to explain how trapped I was within that state,how miserable and unable to even know what was happening to me until a lot of interpersonal damage was done. Because no one from work will communicate with me I cannot have that conversation, no one can appreciate the degree to which I am still struggling and I can’t stop beating myself up inside for not recognizing the warning signs months before mania was in full swing.

If this was as straight forward as having lost a job, as much as there is grief and loss, I could at least busy myself with looking for a new job. But I am still technically connected to my employer and the question of return is unspoken but not denied. Meanwhile I am not able to function well enough to look for another option or contemplate a return. I am also increasingly aware that everything I loved about the job I had is exactly what, over time, made me ill.

The fact is, I am in limbo. I still have a lot of healing ahead. So why is the desire for redemption so important? Or is this really more the need to be heard and understood?

Isn’t that what we all seek in the end?

Lessons from Mother Nature are not always the ones you expect

Maybe it’s the unusually early snow. Tree branches still rich with green foliage weighted to the breaking point under heavy wet snow are decidedly out of place so early in September. If it warms up we may squeeze a little fall out of the year after all. If we get a killing frost the leaves will turn leathery and cling to the trees until spring.

Copyright JM Schreiber 2014 (yes these shots were taken today) — Copyright JM Schreiber 2014
(yes these shots were taken today)

An omen perhaps?

Is it late summer or early winter?

Like trying to define the weather, it can be difficult for me to clearly pin a label on my emotional state. A stable, well medicated state is actually one of relative distance from what I really feel. Blunted at either end of the normal ups and downs. I am not certain if that is a natural or artificial state. It is probably more realistic to call it functional.

Manic? Well, manic is really only recognizable as it recedes. Think of the way that you can become accustomed to a certain level of physical pain and not realize just how severe it is until the painkiller kicks in. But there is no instant relief for a significant manic episode. Manic gradually disappears in the rear view mirror as I creep along and then, just as the road ahead seems to become clear, I hit depression. Or this anxious emptiness that I feel lately.

Like today.

The streets are littered with branches that could not handle the weight of the snow. The power has been off across the western side of the city for hours. As crews manage to restore power to one section, melting snow frees branches that bounce back and knock the wires out all over again. The silence and reduced light has left me alone with my thoughts for much of the day.

There is, however, an important lesson in unexpected situations like this. You have no choice but to ride it out, stay safe and wait until the storm has passed. Only then can you assess the damage, clean up and move forward. After all, we are supposed to be back up to summer temperatures by the weekend.

My own spirits might not lift quite so quickly, but I know from past experience that they will.

With time.

Capturing madness on the page

I started this blog in a fit of manic energy not realizing how very close I was to running over the edge into full blown madness. And now I find myself writing in and around the experience as best I can, unpacking and worrying myself into the future with a level of anxiety that seems to greet me refreshed every morning before I even crawl out of bed.

Taken in the aftermath of major flooding last year this looks like how I feel sometimes... Copyright JM Schreiber 2013 — Taken in the aftermath of major flooding last year this looks like how I feel sometimes…
Copyright JM Schreiber 2013

With my original diagnosis I read all the available materials and although it was pre-internet (imagine!) I spent a lot of time at the library. This time around I find myself in world where so many fellow travelers on the road in and out of sanity are busy scribbling their way along. I have been and will always be selective in what I chose to share about myself with others. Great for maintaining privacy, not so great for making new friends. So I struggle every day with how or what to add to the dialogue.

I think I am personally drawn to creative expressions… photography, poetry and writing but am not sure where to start. I suspect madness, sanity and that huge area in between is best met sideways. So no memoirs for me. Photography is good outlet but I lack the discipline to take it to the next level. I would like to capture that moment when reality and one’s experience of reality begin to part ways. It is such a subtle process with manic depression the way I experience it and I imagine I am not alone in this regard. To those outside, unless they are highly attuned to changes in your patterns of behaviour, the transition can be unnoticed for a time.

And then before you know it you are picking up the pieces or retreating from the world or both.

To date, the finest literary account of slowly growing madness, that I have read, is William Golding’s The Spire. This novel imagines the construction of a 404 foot spire atop a medieval cathedral (inspired by Salisbury Cathedral in England) and is narrated from within the mind of Dean Jocelin. The dean is a man who has attained his position by curious family connection rather than earning it on a solid foundation of faith. As he envisions and directs the construction of the spire, tuberculosis in his spine advances to the point of driving him into a psychotic state. At first he interprets the sensation caused by his infection as angels at his back, sure evidence of God’s blessings. However as his pain and madness grows he becomes increasingly erratic, unstable and irrational. It drives him to conflicts with the master builder, sexual obsessions with a woman, paranoia, jealousy and possibly murder.

Reading with an online reading group added to the richness of the experience of this novel, but for me personally it captured so vividly the sensation of gradually and fully losing grip on reality that I had during my first severe manic episode. By the final moments before the ambulance arrived to whisk me away I was no longer able to distinguish between what I had interpreted as a mental breakdown that I could handle and the creeping fear that the Devil was tormenting me. It was a horrifying moment.

For poor Dean Jocelin because he is not only mad but dying of tuberculosis, his last days and hours are vivid mental and physical torment. It is up to the reader to decide if his soul finds any peace at the end.

Luckily my more recent manic episode did not end with as much drama as the first because someone finally commented on how fast I was talking and I had the shocking realization that I was sick. But the damage was already done all the same. I just wish I could help those who experienced my behaviour understand but I am not certain they wish to listen. And honestly, can I be a more reliable narrator of my own manic experiences than The Spire‘s mad dean?

Draw me a map to my self

Yesterday I took a small road trip with my son out to visit my parents. It’s about a two hour drive each way and this is the first time I felt that I had sufficient stamina and concentration to manage it since my breakdown in June. The countryside is beautiful but the journey did not really offer me more than time to sit and fret behind the steering wheel. I thought about how I used to need a road map to navigate the back highways when my 86 year-old father’s ongoing retreat from civilization first drew them out there a few years back. I no longer need a map and know the route well.

I could, however, use a personal map or trail of bread crumbs to follow back to make sense of the past year or two of my life. A mood disorder can wreak havoc on one’s internal compass. In the hazy debris of an extended period of hypomanic energy sliding into manic, I am finding it impossible to make sense of where I was or where I go from here.

At a deeper, more fundamental sense I have lost faith in myself. Or rather my ability to make sense of my self.

It is likely that this is the affect of depression. It’s hard for me to know because I have rarely ever experienced the sort of black dog depression that many others describe. I tend toward anxiety and a bone weariness that weighs me down, but I do not crawl into bed and pull the covers up. I don’t sleep well, in fact I tend to insomnia. But I don’t recall experiencing the all pervasive lack of physical energy that haunts me now. I find it hard to remember how I ever managed to accomplish all of the projects, personal and professional, that I tackled during the many years of relative stability I experienced over the past ten to fifteen years.

At the moment, the fact that’s really eating away at me is that the last impression I left at work was of a manager who was increasingly high strung and finally quite stressed and obnoxiously concerned that he alone had the skills and perspective to resolve the challenges facing the agency. The manic Mr Hyde side. But how long was he showing his face? And now that I am living with a shy, anxious shadow of my Dr Jekyll self (assuming I even have one) I wish I had GPS system of some kind to help me retrace my steps.

A good therapist would help, and I do have one, but at $180/hour I won’t be seeing her much and if I am going to spend that much I would rather wait until I have figured out where I have been so she can help me figure out where I go from here.

Or maybe it’s better to accept what cannot be changed and look forward instead…

Shame, guilt and absolution

Shame: A painful emotion caused by a strong sense of guilt, embarrassment, unworthiness, or disgrace.

A severe manic episode leaves a residue of shame that no magic formula can resolve or wash away. Your behaviour, actions, words and deeds – no matter how out of character – are remembered by others while you, yourself, have only the foggiest sense of a hellish few days or weeks.

As the weeks pass I find myself unable to shake thoughts of my workplace, the environment in which my manic drama played out. I don’t think about returning to work and I know that at this point I could not even mentally or emotionally entertain that notion even if they would accept me. I realized today that it is the unbearable shame I feel for actions and words I could not control and can never properly apologize for that is eating me up inside.

A post on a blog I follow inadvertently put me in mind of a poem I discovered in the wreckage of my first manic psychosis many years ago. The poem, “Deceptions”, by Philip Larkin was inspired by an account from Henry Mayhew’s London Labour and the London Poor of a young girl who was drugged and raped by her master.

The poem is exacting in its depiction of her grief and the poet admits, unapologetically, that there is no consolation he can give her; recognizing that both victim and perpetrator were deceived in the violent act. I think it is this very measured recognition that there is nothing that he can offer to absolve grief and shame in the sufferer whether the event is recent or buried by the sands of time that gives the poem its power. The following lines struck me when I first encountered them and this time around, perhaps because my manic episode was a much more public event, they clearly articulate the feelings with which I am currently trying to come to terms.

… light, unanswerable and tall and wide,
Forbids the scar to heal, and drives
Shame out of hiding. All the unhurried day,
Your mind lay open like a drawer of knives.

This too shall pass, I know, and I will ease the drawer closed and the emotional scars will fade with time.

Absolution is not the issue. Mental illness is not a sin.

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